Friday, 9 April 2010

Don't cry over wrongly prescribed milk

There is a running joke among some friends of mine and I that I just cannot catch a break when it comes to Baby A.B's allergy and the associated problems. First off, exclusively breastfeeding a baby is hard. Exclusively breastfeeding a baby when you are physically disabled is really hard. Exclusively breastfeeding a baby when you are physically disabled and then that baby turns out to be very seriously allergic to milk so you have to cut all traces of any dairy whatsoever is really REALLY hard. I lost weight, I got sick, I had no energy, I couldn't eat easily and without having to put a lot of thought into my food (a major major problem for an ex anorexic.), I couldn't eat out, or at other people's houses, I didn't trust anyone to cook for was and is, very very difficult. Cutting out dairy also kicked my dormant intolerance of milk into overdrive, and I am now VERY intolerant of it. Hoorah!
Like I said, cannot catch a fucking break.

Dealing with the Dr's has been some of the worst. First I was told there was no such thing as an allergy to milk, and even if there was, there was no way she would get milk through MY milk. I knew this was wrong, but Mr Doctor Man with his big medical degree decided he was NOT WRONG. Even though he was. He refused to refer me to the Paediatrician I needed to speak to. So I went to a different doctor and got my referral. The paed immediately agreed she had a dairy allergy and said the milk exclusion diet I'd started was the best thing to do and gave me a pat on the back. So we toddled off, happy that our problems seemed solved. But they weren't! Because now her classical reflux was fixed by excluding dairy, she still had silent reflux! Joys! We only saw the paed again at the beginning of March, and she wrote an order for the GP to prescribe us an acidity regulator and some dairy-free formula in case we need it. So we toddle off and collect our medication, but the GP has declined to prescribe the formula, and since I wasn't told the paed had recommended it, I didn't know we were supposed to be receiving it. Then we find out that the medication we've been prescribed is HIDEOUS tasting, and only keeps for a fortnight. So we have to get the prescription filled every two weeks, which is hideously inconvenient when the associated paperwork takes four days. This week the GP also put the formula on the prescription, which Mr A picked up and dropped off, because I was stuck inside staring down the Vacuum Hose of Anxiety, but he gets home and I find out that the GP has only gone and prescribed the wrong formula! The stuff that he's prescribed is a supplement and it isn't even suitable for children her age! It's 12 months plus, and neither he NOR the pharmacist noticed that they'd prescribed and ordered this shit for a fucking 8 month old baby. So I had to go out today and dick around, going from pharmacy to GP's office getting things corrected.

Can someone tell me how I am supposed to trust these people with my and my baby's life when they can't even check age suitability labels when prescribed what is essentially medication?


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