tag:blogger.com,1999:blog-7156460846792208270.post7017174982937348710..comments2023-06-13T13:04:54.049+01:00Comments on The Heart Star: "...and then my boobs will basically explode and I'll die."Arienettehttp://www.blogger.com/profile/05226584891432763246noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-7156460846792208270.post-73654836980667069612010-06-30T22:48:20.629+01:002010-06-30T22:48:20.629+01:00Sorry, just seen the typos - renew my blue badge, ...Sorry, just seen the typos - renew my blue badge, not review.<br /><br />The anti-spam 'word' made me chuckle, given my BMI's dropped to 17.1 now, lol.. it was 'undiet'!!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7156460846792208270.post-56982435965268246952010-06-30T22:45:30.148+01:002010-06-30T22:45:30.148+01:00Yes, it makes a lot of sense to me.
Every 'co...Yes, it makes a lot of sense to me.<br /><br />Every 'concession' to my illness (a walking stick, a wheelchair, blue badge, DLA and now the limited properties I can look at) is another blow to the idea that I don't have anything wrong with me, and I'm somehow DON'T have the 6'6", built-like-a-brick-shit-house physique (and associated strength) that I think I have.<br /><br />My ex-mum-in-law gave me a good way to look at it: I'm not disabled, I just have a disabling condition. It takes away the stigma of the label applying to me as a person, and becomes something I just happen to have, like my hair and eye colour. Like separating the behaviour from the person, I guess.<br /><br />All I can advise is... Given that you've already qualified for DLA Higher Mobility etc, getting a badge should be a piece of piss; the hard work will be done for The Powers That Be. On the form I've just filled in to review, all I had to do was fill in my name, tick the box and submit a photocopy of my letter showing I get DLA Higher Mob and the rate.<br /><br />At least apply for the forms, hun. Just because you need a blue badge is not a comment on you or your worthiness to have 'em, we all need help some times and I know (I REALLY know) it's a pisser, but if it frees up more spoons for you...<br /><br />[another big hug]<br /><br />xxxAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7156460846792208270.post-20210769273797192682010-06-30T15:40:59.588+01:002010-06-30T15:40:59.588+01:00*big hugs* Your comment was so lovely, I read it t...*big hugs* Your comment was so lovely, I read it this morning before I got out of bed and it almost made me cry.<br /><br />I too, am an illness-denying numpty. I can't help it, in my parents' house you had to have a leg falling off to be considered ill, and it taught me that I'm just weak and should just power through. Which is bollocks, actually, but when it's what you're taught your whole life how do you get away from it? The rule in my house if we wanted to stay home from school was 'You'll feel better by lunch.' So from the age of 6 I've been pushing myself past my instincts, on the basis that if I put up with a few hours of pain/discomfort/illness, I'll feel better. This is probably a fine principle if you are not broken fundementally, and when pushing past illness for a few hours doesn't have long-term consequences, but I'm ure you know what happens when people like us do it.<br /><br />People keep telling me to get a blue badge, but I really can't. I'm too ashamed. It's so hard, not having a diagnosis, I don't feel like there's anything 'really' wrong. This is a bit of a self-perpetuating cycle, actually. I don't feel 'legitimately' disabled, because I don't have a diagnosis, so I won't go and GET a diagnosis, because I don't think my GP will take me seriously. So I never get diagnosed. So I don't feel legitimately disabled. So I don't go to see a GP... I keep meaning to go switch GP's but there's always a REALLY good reason not to. Because I'm a big scaredy cat. It makes tons of sense, right? Right.<br /><br />You'd be surprised how many people don't consider raising children as a gainful use of your time. Not eanring moneyand paying tax? Then you're not doing anything! Lame.Arienettehttps://www.blogger.com/profile/05226584891432763246noreply@blogger.comtag:blogger.com,1999:blog-7156460846792208270.post-67773834045035456552010-06-30T10:36:20.079+01:002010-06-30T10:36:20.079+01:00[hug, again, as usual]
As someone with CFS/ME, I&...[hug, again, as usual]<br /><br />As someone with CFS/ME, I've kinda filtered out a lot of what being changed about the DLA on the grounds that I've enough stuff to worry about at the moment/have been so self-involved or involved in the lives of a couple of friends that it's not really registered.. so thank you, first of all, for bringing it into my consciousness - it's something I really should know about.<br /><br />Secondly: I would never, ever park in a P&C place, even if - as is often the case - my legs are barely working, so that disabled guy's a total twat; it's obvious that disability can make a certain type of person feel their needs totally over-write everyone elses. I think you really should apply for a disabled badge too though, hun, as it's very clear you need one :(<br /><br />I always feel other people have more 'legitimate' disabilities than I have (but that's mostly because I'm an illness-denying numpty), and in a way I'm glad I need to use a walking stick as it's a very visual clue that 'something's up' (I've had an old guy mouth stuff at me when I've waited for a disabled parking space, and had him shuffle off embarrassed when I've waved my Blue Badge at him.) However, it IS valid, and so is yours - and the attacks from other disabled groups are all fear-based, which is a very sad reflection on the lack of community/society there is today (what in the hell happened to protecting the weakest in society? Who has the right to judge?)<br /><br />This brought me to the verge of tears: "I'm drowning in the feeling of being worthless, scum, a scrounger, no good, a waster."<br /><br />I had an appt at my local Jobcentre on Monday, to see what support they could provide to 'get me back to work' and, like last time, I was so tired I could barely speak and needed help to get back to my car. The lady wrote: "no action for the immediate future", or something similar, and I felt awful. I can barely cope with what I have to do, let alone add some form of work to my daily routine, but the idea of not contributing something, of being a 'no good scrounger, waster' is something I too feel very keenly and deeply. I know how it eats away at your self-image, especially when it seems society/media sees you that way, too.<br /><br />But you are not 'scum'. You are not, in anyway, 'worthless'. You are an incredible, intelligent, sensitive, strong, articulate, intense, huge-hearted woman raising a child at tremendous sacrifice to yourself, and a force for good in this world. Please, never, ever forget that [hug]<br /><br />Sending more love and hugs xxAnonymousnoreply@blogger.com